After four months of enduring a particular drug called Dexamethasone – a powerful anti-inflammatory steroid used in the treatment of blood disorders, I finally did away with my last bottle. The comedown from Dex can only be likened to my experiences in clubs during the 90’s, where people of my age group will nod politely… Continue reading An Ode To Dexamethsone
I’ve reached the end of stage one chemotherapy treatment for my Amyloid/Myeloma blood disorder. It’s been a trying eighteen weeks of fruitful, painful, hilarious & life questioning experience and change. Today I’m going in for a Bonemarrow Biopsy and spleen scan, the former which shall determine how effective my first part of treatment has been,… Continue reading The end of Act one, and a nice little pain in the arse.
There are so many things you should and shouldn’t do when you’ve got blood cancer. While i’ll save that diatribe for another post, right now I wanted to touch on some things which frustrate me as I go through this ‘experience’. (Let’s not call it a journey folks, unless you’re comparing my journey to… Continue reading The “Cancer Death Touch”, and other no-no’s you should be aware of!
I wasn’t prepared for the reaction to my public coming out of having an incurable blood cancer. It has been surprisingly positive and encouraging, with people following my lead of ‘no sad faces’ . Of course I think my overall attitude and demeanour towards this horrible health problem has helped shape the conversation. People have… Continue reading I’m good thanks, no really!
Bloody. blood disorder. I’ve never sworn so much in my entire life (that’s a lie). The day I met with my doctors who told me I have an incurable, but treatable disease. The thoughts went from “What did I do to deserve this” to “How on earth could this happen? I’m so young and healthy.” Now… Continue reading Bloody blood disorder