Happy Birthday! Happy birthday to my immune system which was installed in February 2017. Happy birthday to me! on October 31, I survived 255 days post-transplant, beating the odds that were not in my favour, and thus proving evil never dies! It’s certainly been a wild ride these past few months, with countless followup doctors… Continue reading nine months later
I noticed a bit of a problem with the site this week when I put aside some time to do some more writing. It turns out the posts I saved during my stay in hospital never posted as published (fuck fuck fuck). And to top it off, they have all mysteriously disappeared from my drafts… Continue reading Whoops! i’m not dead.
Happy Birthday! I had my new immune system installed on 16 February 2016. It consisted of 5.5 million of my own blood stem cells, which were harvested via a process called Apheresis in October 2016. As I was quite unwell and unwilling/reluctant to continue to the next stage at that time, I agreed with my… Continue reading An uneventful transplant
Today marks a very important day in my life. I have my brand new immune system installed today, in the hopes it will rescue my body from failing and gift me with a deep remission of both blood cancers, and a better quality of life. Can’t say I’m looking forward to it, it has been… Continue reading Day Zero – stem cell transplant
I did something super ballsy tonight, I made public a video talking about my two blood cancers, my treatment and the realities of the prognosis. This four-minute video was the product of over 2 hours worth of footage, some scripted, some completely from the heart. It was very confronting to do and I struggled to… Continue reading Sharing my story with video
I’m okay, actually pretty good at the moment, but I need to focus on some non-cancer-related projects which I somehow dreamt up during the past year. I’ll be back.
I’ve reached the end of stage one chemotherapy treatment for my Amyloid/Myeloma blood disorder. It’s been a trying eighteen weeks of fruitful, painful, hilarious & life questioning experience and change. Today I’m going in for a Bonemarrow Biopsy and spleen scan, the former which shall determine how effective my first part of treatment has been,… Continue reading The end of Act one, and a nice little pain in the arse.
There are so many things you should and shouldn’t do when you’ve got blood cancer. While i’ll save that diatribe for another post, right now I wanted to touch on some things which frustrate me as I go through this ‘experience’. (Let’s not call it a journey folks, unless you’re comparing my journey to… Continue reading The “Cancer Death Touch”, and other no-no’s you should be aware of!
Bloody. blood disorder. I’ve never sworn so much in my entire life (that’s a lie). The day I met with my doctors who told me I have an incurable, but treatable disease. The thoughts went from “What did I do to deserve this” to “How on earth could this happen? I’m so young and healthy.” Now… Continue reading Bloody blood disorder